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Katie is affected by  'Bulbar palsy', a rare condition that means

she must be watched over twenty fours a day as she is at risk of

choking. She has no gag reflex and so her airway is unprotected. 

Fed through a 'button' she lives with her Mum and Dad, Clare and

Derek and her twin sister Holly.  I've photographed the family on

a couple of occasions now and I'm struck by the way life goes on

when they could so readily crumble under what are great

demands that they so readily face.